Good news on the blood work. My doctor left a message earlier this week that the results were fine. They have to keep checking me every once in awhile, since Avonex can cause liver problems, but so far so good for me.
Thursday, April 24, 2003
Monday, April 21, 2003
Sometimes this disease can be embarrassing.
On Saturday, I was dealing with a fever and fatigue caused by my Friday night shot. I fell asleep on the couch and made us late for our afternoon appointment to sign papers on the house we're building. Then we went to have dinner with some friends that night. I was practically dozing on the couch after dinner, and my hostess thought it was because I was bored. I don't know why I felt self-conscious about saying it was the medicine, but I did. I guess I was afraid that they'd feel bad about asking me to come over when I felt less than 100%, when I had been so excited to receive their invitation.
On Saturday, I was dealing with a fever and fatigue caused by my Friday night shot. I fell asleep on the couch and made us late for our afternoon appointment to sign papers on the house we're building. Then we went to have dinner with some friends that night. I was practically dozing on the couch after dinner, and my hostess thought it was because I was bored. I don't know why I felt self-conscious about saying it was the medicine, but I did. I guess I was afraid that they'd feel bad about asking me to come over when I felt less than 100%, when I had been so excited to receive their invitation.
Friday, April 18, 2003
Doctor's Appointment
Had my regular appointment with the neurologist yesterday. Every three months, I check in, we do a few simple tests, and just discuss how things are going with the disease. Yesterday's appointment was quite pleasant. I've made wonderful progress in the last three months. When he asks me questions about my balance, I can just laugh, because I do so many balance exercises in my Pilates class.
I did have two slightly abnormal things yesterday. The lower number on my blood pressure was high, even when I sat calmly and had it checked again. I blamed it on house anxiety. And during my tests, there were tremors in my hands. Since they showed up in both hands, it seems more likely to be a side effect of my medicine.
I also had some blood drawn yesterday. They do bloodwork every 6 months to make sure everything still checks out. Sometimes, Avonex can cause problems with the liver, so these blood tests can just verify that mine's still OK. I used to be so scared of the needle used for blood tests, and now I just laugh. Nothing like a weekly shot to get me over my fears in that area.
One of the nice things about these frequent appointments is the ability to ask questions in a timely manner. As most North Carolinians could tell you, allergy season is in full swing. Well, three months ago, I didn't care whether any allergy medications interacted with my medicines, but after a few days of sniffling and sneezing, I can assure you that I do now. The nurse ran me a list of all known drug interactions with my medicines, and now I know that I can take any allergy medicine I want when those snifflies return. And after seeing the list (or, more accurately, the lack of list), I can feel comfortable with any over-the-counter medicine now - I don't need to wonder.
Opening the Mailbag
Now time for my own version of viewer mail. One of the most common questions I've been asked, particularly right after being diagnosed, was "What does this mean for any family plans that you and Tim may have?"
I just got my latest issue of Inside MS, which is the magazine for the National MS Society, and they spent most of the issue discussing MS and pregnancy. The information from that matched up with information I've gotten from my doctor and other sources, like pamphlets and conferences.
The basic answer is: it has virtually no impact.
Most women with MS have fewer exacerbations during pregnancy, especially in the last two trimesters. The anecdotal evidence is so strong that there are research studies looking into female hormones and their effect on MS. As far as pregnancy, labor, and delivery go, a woman with MS doesn't usually encounter any special issues.
There is a 20-40% chance of an attack in the period right after delivery. Most people attribute this to the stress and lack of sleep that a new mother faces. This makes breastfeeding a question that needs to be pondered. Should a woman with MS breastfeed her child and take the risk of an exacerbation? Or should the woman get back on her medication and not pass on the benefits of breast milk to her child? From everything I've read and asked, it's a personal decision. My OB/GYN is a breast-feeding advocate, but he recognizes that my situation is special and is comfortable with whatever decision I choose. And since I don't have a child yet, I'm keeping my mind open. That's a decision Tim and I will make if we have a child.
House Anxiety
I mentioned this in my blood pressure section, so I guess I should elaborate...
Tim and I are having a carriage house built. The floor plan is absolutely terrific, and this house will make our lives easier in so many ways:
* Cut down big time on commuting. For example, my commute will go from 20 miles (one way) to 6 miles. Tim gets benefits too.
* No more yardwork! Poor Tim, his schedule is not conducive to getting major yardwork done. And with my heat sensitivity, I'm not a whole lot of help. Now we won't have to worry about it.
* First floor master bedroom. Now when I get tired, or if I ever have any mobility issues, I can go to bed without climbing the stairs.
* Two car garage. Bye bye one-car carport, hello dry storage for both of us. Now in bad weather, we can take Tim's SUV without getting drenched to get in it.
* Very convenient shopping. There's a big strip mall right across the street from the community, so I'll be able to run errands without running all over the place.
* A community swimming pool. My neurologist encourages me to swim, since I can get exercise while keeping my body temperature regulated.
* Family close by. My parents and sister will be living in a different part of the community, so if I have an attack and need someone to drive me somewhere or run errands for me, I've got folks nearby I can call. I could even call them to pick me up at work if I have an attack there and can't drive home.
* We're getting a whirlpool tub! I love luxuriating in the bathtub, and this will be so much nicer than my itty-bitty tub.
I'm sure I'll be talking more about the house over the next year, while we go through the whole process of getting it built. It's exciting...but scary at the same time!
Had my regular appointment with the neurologist yesterday. Every three months, I check in, we do a few simple tests, and just discuss how things are going with the disease. Yesterday's appointment was quite pleasant. I've made wonderful progress in the last three months. When he asks me questions about my balance, I can just laugh, because I do so many balance exercises in my Pilates class.
I did have two slightly abnormal things yesterday. The lower number on my blood pressure was high, even when I sat calmly and had it checked again. I blamed it on house anxiety. And during my tests, there were tremors in my hands. Since they showed up in both hands, it seems more likely to be a side effect of my medicine.
I also had some blood drawn yesterday. They do bloodwork every 6 months to make sure everything still checks out. Sometimes, Avonex can cause problems with the liver, so these blood tests can just verify that mine's still OK. I used to be so scared of the needle used for blood tests, and now I just laugh. Nothing like a weekly shot to get me over my fears in that area.
One of the nice things about these frequent appointments is the ability to ask questions in a timely manner. As most North Carolinians could tell you, allergy season is in full swing. Well, three months ago, I didn't care whether any allergy medications interacted with my medicines, but after a few days of sniffling and sneezing, I can assure you that I do now. The nurse ran me a list of all known drug interactions with my medicines, and now I know that I can take any allergy medicine I want when those snifflies return. And after seeing the list (or, more accurately, the lack of list), I can feel comfortable with any over-the-counter medicine now - I don't need to wonder.
Opening the Mailbag
Now time for my own version of viewer mail. One of the most common questions I've been asked, particularly right after being diagnosed, was "What does this mean for any family plans that you and Tim may have?"
I just got my latest issue of Inside MS, which is the magazine for the National MS Society, and they spent most of the issue discussing MS and pregnancy. The information from that matched up with information I've gotten from my doctor and other sources, like pamphlets and conferences.
The basic answer is: it has virtually no impact.
Most women with MS have fewer exacerbations during pregnancy, especially in the last two trimesters. The anecdotal evidence is so strong that there are research studies looking into female hormones and their effect on MS. As far as pregnancy, labor, and delivery go, a woman with MS doesn't usually encounter any special issues.
There is a 20-40% chance of an attack in the period right after delivery. Most people attribute this to the stress and lack of sleep that a new mother faces. This makes breastfeeding a question that needs to be pondered. Should a woman with MS breastfeed her child and take the risk of an exacerbation? Or should the woman get back on her medication and not pass on the benefits of breast milk to her child? From everything I've read and asked, it's a personal decision. My OB/GYN is a breast-feeding advocate, but he recognizes that my situation is special and is comfortable with whatever decision I choose. And since I don't have a child yet, I'm keeping my mind open. That's a decision Tim and I will make if we have a child.
House Anxiety
I mentioned this in my blood pressure section, so I guess I should elaborate...
Tim and I are having a carriage house built. The floor plan is absolutely terrific, and this house will make our lives easier in so many ways:
* Cut down big time on commuting. For example, my commute will go from 20 miles (one way) to 6 miles. Tim gets benefits too.
* No more yardwork! Poor Tim, his schedule is not conducive to getting major yardwork done. And with my heat sensitivity, I'm not a whole lot of help. Now we won't have to worry about it.
* First floor master bedroom. Now when I get tired, or if I ever have any mobility issues, I can go to bed without climbing the stairs.
* Two car garage. Bye bye one-car carport, hello dry storage for both of us. Now in bad weather, we can take Tim's SUV without getting drenched to get in it.
* Very convenient shopping. There's a big strip mall right across the street from the community, so I'll be able to run errands without running all over the place.
* A community swimming pool. My neurologist encourages me to swim, since I can get exercise while keeping my body temperature regulated.
* Family close by. My parents and sister will be living in a different part of the community, so if I have an attack and need someone to drive me somewhere or run errands for me, I've got folks nearby I can call. I could even call them to pick me up at work if I have an attack there and can't drive home.
* We're getting a whirlpool tub! I love luxuriating in the bathtub, and this will be so much nicer than my itty-bitty tub.
I'm sure I'll be talking more about the house over the next year, while we go through the whole process of getting it built. It's exciting...but scary at the same time!
Thursday, April 10, 2003
Yeah, I know, it's been awhile since I've updated this thing.
My Health
For the most part, it's been OK. I've been burning the candle at both ends this week, getting to work at 7am to cover for a coworker on vacation. Getting out of my routine also meant I forgot to consistently take my medication, so getting overtired and undermedicated led to my complete feeling of rundown yesterday. I forced myself to go to bed early, and I'm doing better today. I'm still tired, but I'm not at that feverish fatigue point that I found yesterday, when I knew for sure I had pushed myself too much.
I thought that I might continue getting up earlier in the morning once I was done covering for my coworker, but considering how tired I've been this week, I doubt I will.
MS Walk
The MS Walk was supposed to be held in this area last Saturday, but I don't think they got a chance to walk because of the weather. I didn't sign up to do it this year, for a variety of reasons. Last year, it was important for me to do it, to feel like I was doing something positive to fight this illness. But I did two fund-raising events for MS last year, and that took a lot out of me. I'm not a fundraiser, yet I managed to raise almost $1,400 for MS last year. I need to give myself - and the generous people who sponsored me - a bit of a break. If the MS Society does the Pooch Parade again, I'll be there, because the dogs had such an incredible time at last year's event.
Flexibility
I know I've been complaining a lot about back pain and stiffness. Well, my hard work in Pilates class has been paying off, and I can honestly say that I'm more flexible now than I have ever been in my life.
A couple of Sundays ago, I woke up so stiff that I could barely bend over. I dragged myself into the spare room and did Pilates for about 5 minutes. Then I leaned over and touched my toes without bending my knees. I've never done that before. That afternoon, I was showing off to my family some of the stuff I can do now. The girl who couldn't sit down, stretch out her legs, and touch her toes can now wrap her hands about the arches of her feet without bending her knees. Tim flexed my foot during a foot massage that weekend and was amazed at how much more flexible it was than in the past.
A couple of days ago, I did a yoga tape. This was after taking a week off of exercise due to injury. I was ready to laugh out loud when it was time to do a variation of the bridge pose. On the tape, the instructor says to put a block under your waist and rest your body on the block. When I started doing the bridge pose, I would have to fight to lift myself up farther so I could put the brick down. This time, I had to lower my hips to rest them on the brick. It's fun when progress is so obvious.
Am I pain-free? No, I still get twinges now and then. But I recover much faster, and am still capable of doing more to get through the pain. I was feverish last night during Pilates class, and I still was performing a lot of the moves. But having to take a week off for injury taught me a valuable lesson - I've got to keep moving to keep feeling good.
My Health
For the most part, it's been OK. I've been burning the candle at both ends this week, getting to work at 7am to cover for a coworker on vacation. Getting out of my routine also meant I forgot to consistently take my medication, so getting overtired and undermedicated led to my complete feeling of rundown yesterday. I forced myself to go to bed early, and I'm doing better today. I'm still tired, but I'm not at that feverish fatigue point that I found yesterday, when I knew for sure I had pushed myself too much.
I thought that I might continue getting up earlier in the morning once I was done covering for my coworker, but considering how tired I've been this week, I doubt I will.
MS Walk
The MS Walk was supposed to be held in this area last Saturday, but I don't think they got a chance to walk because of the weather. I didn't sign up to do it this year, for a variety of reasons. Last year, it was important for me to do it, to feel like I was doing something positive to fight this illness. But I did two fund-raising events for MS last year, and that took a lot out of me. I'm not a fundraiser, yet I managed to raise almost $1,400 for MS last year. I need to give myself - and the generous people who sponsored me - a bit of a break. If the MS Society does the Pooch Parade again, I'll be there, because the dogs had such an incredible time at last year's event.
Flexibility
I know I've been complaining a lot about back pain and stiffness. Well, my hard work in Pilates class has been paying off, and I can honestly say that I'm more flexible now than I have ever been in my life.
A couple of Sundays ago, I woke up so stiff that I could barely bend over. I dragged myself into the spare room and did Pilates for about 5 minutes. Then I leaned over and touched my toes without bending my knees. I've never done that before. That afternoon, I was showing off to my family some of the stuff I can do now. The girl who couldn't sit down, stretch out her legs, and touch her toes can now wrap her hands about the arches of her feet without bending her knees. Tim flexed my foot during a foot massage that weekend and was amazed at how much more flexible it was than in the past.
A couple of days ago, I did a yoga tape. This was after taking a week off of exercise due to injury. I was ready to laugh out loud when it was time to do a variation of the bridge pose. On the tape, the instructor says to put a block under your waist and rest your body on the block. When I started doing the bridge pose, I would have to fight to lift myself up farther so I could put the brick down. This time, I had to lower my hips to rest them on the brick. It's fun when progress is so obvious.
Am I pain-free? No, I still get twinges now and then. But I recover much faster, and am still capable of doing more to get through the pain. I was feverish last night during Pilates class, and I still was performing a lot of the moves. But having to take a week off for injury taught me a valuable lesson - I've got to keep moving to keep feeling good.
Sunday, March 23, 2003
What a difference a few hours make.
I slept in this morning. We were supposed to go to Sunday School class, and I was really looking forward to it. But I was nauseous last night, so I didn't want to push myself today. Well, I slept in so late that my back was painfully stiff. I gently worked it back into some semblance of normalcy.
After having brunch with my family, we headed back to my parents' house so that my sister could unwrap her birthday gifts. While she did so, I was on the floor, effortlessly moving from one Pilates move to another. My mom was pleasantly surprised to watch me stretch and grab my feet, and then move into other strength moves. I used to not be able to grab my foot when I stretched my leg out, but now I was grabbing the arch with little effort. I even was able to reach down and touch the floor in a straight-legged forward bend - the first time I've ever done that!
I've never been flexible, and up until recently, I had to deal with a lot of pain. Now, even though I have this disease that could affect my mobility, I'm more flexible than ever...most of the time. I just have to ease into it some days when I start out stiff. I also have to keep working at it, to keep showing the improvement.
I slept in this morning. We were supposed to go to Sunday School class, and I was really looking forward to it. But I was nauseous last night, so I didn't want to push myself today. Well, I slept in so late that my back was painfully stiff. I gently worked it back into some semblance of normalcy.
After having brunch with my family, we headed back to my parents' house so that my sister could unwrap her birthday gifts. While she did so, I was on the floor, effortlessly moving from one Pilates move to another. My mom was pleasantly surprised to watch me stretch and grab my feet, and then move into other strength moves. I used to not be able to grab my foot when I stretched my leg out, but now I was grabbing the arch with little effort. I even was able to reach down and touch the floor in a straight-legged forward bend - the first time I've ever done that!
I've never been flexible, and up until recently, I had to deal with a lot of pain. Now, even though I have this disease that could affect my mobility, I'm more flexible than ever...most of the time. I just have to ease into it some days when I start out stiff. I also have to keep working at it, to keep showing the improvement.
Wednesday, March 19, 2003
Well, I was going to start a new blog yesterday, but it's not working yet. Oh well. Hopefully, I'll be able to get this to work.
Tonight is the start of my Pilates Mat 2 class. If you would have told me I would not only make it through Mat 1, but would sign up for a second dose, I would have laughed. Well, I would have laughed after about two or three classes, anyway. But I'm sticking with it and looking forward to this evening.
Tonight is the start of my Pilates Mat 2 class. If you would have told me I would not only make it through Mat 1, but would sign up for a second dose, I would have laughed. Well, I would have laughed after about two or three classes, anyway. But I'm sticking with it and looking forward to this evening.
Monday, March 17, 2003
Had an up and down week. Most of the week was great (despite the showing of my basketball teams). But I reacted poorly to my shot this weekend and spent most of the time resting. I had so little energy that I missed going to dinner with friends on Saturday and Tim's performance with the MasterChorale on Sunday. I was tired, feverish, and had a few chills. Sigh. Just when I think I've got the side effects licked, I have them again. I guess I'm just one of those people forced to deal with sporadic side effects.
Didn't finish my Get With the Program exercise program this weekend, since I was too tired to do another cardio and stretching session. Oh, well. That's just how it goes sometimes. I've scheduled some workouts for this week, and we'll see if I'm up to keeping these appointments with myself.
Didn't finish my Get With the Program exercise program this weekend, since I was too tired to do another cardio and stretching session. Oh, well. That's just how it goes sometimes. I've scheduled some workouts for this week, and we'll see if I'm up to keeping these appointments with myself.
Monday, March 10, 2003
Greenbrier Weekend
We had a wonderful vacation! The weather was absolutely perfect, which they said is a first for a long time. On Friday night, we basically just rested and ate. After an awesome breakfast on Saturday, we took a tour of their formerly-top-secret bunker. We had a quick lunch, then took a carriage ride around the resort. Then it was off to the spa for some stone massages, followed by more relaxing and eating. We shopped a little yesterday before getting into the car to head home. We stopped by Tim's grandmother's for a surprise visit during the afternoon, and then got home to cheer on both of our alma maters to upset victories in basketball.
The only downside of the weekend was some lower back pain. It's been almost two months since it's felt this bad. Even the massage didn't do a whole lot for it. I have an herbal back pillow that I can heat up and apply to it, but I can't find the thing - ack.
Anniversary Update
I'll be too busy this weekend to mope about the fact that I was diagnosed with MS a year ago. On Friday night, I'll be watching the ACC Tournament at home with Tim and our friends Walter and Rhonda. In addition to watching more basketball and having a fantasy baseball draft on Saturday, I'll also be heading out for dinner with friends, including one of Tim's colleagues from Germany. I always have a blast with this crew.
The ACC Tournament is one of my favorite sporting events of the year. Who am I kidding? It's the best. I just wish I could be home Friday afternoon to watch Wake Forest play, but things will be too busy at work, unfortunately. At least UVA managed to avoid the play-in game, so I can watch them on Friday night while munching on pizza and wings and having a beer. That's a great way to spend a Friday night.
Get With the Program
Now that vacation is over, it's time to kick it up a notch and enter Phase 2. The goals include adding another glass of water and another day of functional exercises. I've been meeting the Phase 2 requirements for those two areas for the past two weeks, so no problem there. I also am supposed to start adding cardio and limiting my alcohol. Between the fitness center at work (literally, right around the corner from my desk) and my exercises videos, I should be able to handle the cardio requirement.
I'm going to do an exercise video tonight. I planned to make black bean lasagna for dinner, and it takes awhile to bake. On the plus side, that means I can put it together, throw it in the oven, and forget about it while I work out. Tim has a meeting tonight, so I will have plenty of time to do both my functional exercises and a cardio workout before dinner. I've already exceeded my water requirement for today, so I'm on track there.
We had a wonderful vacation! The weather was absolutely perfect, which they said is a first for a long time. On Friday night, we basically just rested and ate. After an awesome breakfast on Saturday, we took a tour of their formerly-top-secret bunker. We had a quick lunch, then took a carriage ride around the resort. Then it was off to the spa for some stone massages, followed by more relaxing and eating. We shopped a little yesterday before getting into the car to head home. We stopped by Tim's grandmother's for a surprise visit during the afternoon, and then got home to cheer on both of our alma maters to upset victories in basketball.
The only downside of the weekend was some lower back pain. It's been almost two months since it's felt this bad. Even the massage didn't do a whole lot for it. I have an herbal back pillow that I can heat up and apply to it, but I can't find the thing - ack.
Anniversary Update
I'll be too busy this weekend to mope about the fact that I was diagnosed with MS a year ago. On Friday night, I'll be watching the ACC Tournament at home with Tim and our friends Walter and Rhonda. In addition to watching more basketball and having a fantasy baseball draft on Saturday, I'll also be heading out for dinner with friends, including one of Tim's colleagues from Germany. I always have a blast with this crew.
The ACC Tournament is one of my favorite sporting events of the year. Who am I kidding? It's the best. I just wish I could be home Friday afternoon to watch Wake Forest play, but things will be too busy at work, unfortunately. At least UVA managed to avoid the play-in game, so I can watch them on Friday night while munching on pizza and wings and having a beer. That's a great way to spend a Friday night.
Get With the Program
Now that vacation is over, it's time to kick it up a notch and enter Phase 2. The goals include adding another glass of water and another day of functional exercises. I've been meeting the Phase 2 requirements for those two areas for the past two weeks, so no problem there. I also am supposed to start adding cardio and limiting my alcohol. Between the fitness center at work (literally, right around the corner from my desk) and my exercises videos, I should be able to handle the cardio requirement.
I'm going to do an exercise video tonight. I planned to make black bean lasagna for dinner, and it takes awhile to bake. On the plus side, that means I can put it together, throw it in the oven, and forget about it while I work out. Tim has a meeting tonight, so I will have plenty of time to do both my functional exercises and a cardio workout before dinner. I've already exceeded my water requirement for today, so I'm on track there.
Thursday, March 06, 2003
I always tell myself I'm going to write something in my blog, but then I let things pile up until I end up writing one big massive entry.
V-A-C-A-T-I-O-N
Woohoo! Tim and I leave tomorrow for a long weekend at The Greenbrier. I bought a certificate at a charity auction and got a great deal. After our amazing anniversary trip last June to the Grove Park in Asheville, I've got Tim addicted to resort/spa vacations. But what's not to like? Getting pampered, great food, and not having to worry about chores, taxes, etc. for an entire weekend!
Tim excitedly poured over the spa menu and decided to try a stone massage. Since I've never had one, I thought it would be fun to try something new. So Saturday afternoon, we'll find out what the fuss is all about. Tim also wants to take a carriage ride while we're there - should be fun!
Mail
I got email last week! It was so cool hearing from folks. It also reminded me how far (and I mean really far) behind I am on responding to the regular mail I've gotten. And let's not even bring up the fact that I didn't have my act together to get Christmas cards out this year. I have been thrilled by every letter, note, and card I've gotten, and I am trying to get back on track with my correspondence so I can let folks know personally.
Happy? Anniversary
The 15th of this month will mark a year since I found out I have MS. I plan to spend the day watching the ACC Tournament semi-finals and participating in a fantasy baseball online draft. In other words, I plan to just keep doing what I always do. That's all I can do, isn't it?
The Silly Side of My Life
As I mentioned, I have a fantasy baseball team. Actually, I have two teams, the Ballhogs and Base-ically Evil. I also have a fantasy hockey team (Bluebabies), a fantasy NBA team (BallGods), and a fantasy golf team (19th Hole Gang). Once a sports junkie, always a sports junkie. I've just expanded into fantasy sports. At least I don't have a fantasy NASCAR team...yet/
Exercise
I'm still doing a great job on my Get With the Program exercises, and I'm easily beating the minimum number of workouts per week. Next week, I'm moving to Phase 2 of the program, so I'll have to balance those exercises with cardio workouts. Given the number of days I'm currently exercising, it should not be a problem.
My Pilates class comes to an end next week. I've already signed up for the continuation. During class Tuesday, I was amazed at how far I've come...and how much I still have to learn. But I'm having a lot less back pain, both frequency and severity. My flexibility has already improved dramatically. Given the muscle spasticity that can accompany MS, I am definitely sticking with what is working for me.
It's funny, though...I used to hate doing ab exercises (and I'm still not enthused about the ones in GWTP), but I enjoy working my abs like crazy during Pilates class. Go figure.
MS Walk
The MS Walk is scheduled for Saturday, April 5. I've been a deadbeat about registering, but I will be doing the walk. More information to follow. Since I'm not in as good shape this year as I was last year, I'll definitely be needing moral support to get through this!
V-A-C-A-T-I-O-N
Woohoo! Tim and I leave tomorrow for a long weekend at The Greenbrier. I bought a certificate at a charity auction and got a great deal. After our amazing anniversary trip last June to the Grove Park in Asheville, I've got Tim addicted to resort/spa vacations. But what's not to like? Getting pampered, great food, and not having to worry about chores, taxes, etc. for an entire weekend!
Tim excitedly poured over the spa menu and decided to try a stone massage. Since I've never had one, I thought it would be fun to try something new. So Saturday afternoon, we'll find out what the fuss is all about. Tim also wants to take a carriage ride while we're there - should be fun!
I got email last week! It was so cool hearing from folks. It also reminded me how far (and I mean really far) behind I am on responding to the regular mail I've gotten. And let's not even bring up the fact that I didn't have my act together to get Christmas cards out this year. I have been thrilled by every letter, note, and card I've gotten, and I am trying to get back on track with my correspondence so I can let folks know personally.
Happy? Anniversary
The 15th of this month will mark a year since I found out I have MS. I plan to spend the day watching the ACC Tournament semi-finals and participating in a fantasy baseball online draft. In other words, I plan to just keep doing what I always do. That's all I can do, isn't it?
The Silly Side of My Life
As I mentioned, I have a fantasy baseball team. Actually, I have two teams, the Ballhogs and Base-ically Evil. I also have a fantasy hockey team (Bluebabies), a fantasy NBA team (BallGods), and a fantasy golf team (19th Hole Gang). Once a sports junkie, always a sports junkie. I've just expanded into fantasy sports. At least I don't have a fantasy NASCAR team...yet/
Exercise
I'm still doing a great job on my Get With the Program exercises, and I'm easily beating the minimum number of workouts per week. Next week, I'm moving to Phase 2 of the program, so I'll have to balance those exercises with cardio workouts. Given the number of days I'm currently exercising, it should not be a problem.
My Pilates class comes to an end next week. I've already signed up for the continuation. During class Tuesday, I was amazed at how far I've come...and how much I still have to learn. But I'm having a lot less back pain, both frequency and severity. My flexibility has already improved dramatically. Given the muscle spasticity that can accompany MS, I am definitely sticking with what is working for me.
It's funny, though...I used to hate doing ab exercises (and I'm still not enthused about the ones in GWTP), but I enjoy working my abs like crazy during Pilates class. Go figure.
MS Walk
The MS Walk is scheduled for Saturday, April 5. I've been a deadbeat about registering, but I will be doing the walk. More information to follow. Since I'm not in as good shape this year as I was last year, I'll definitely be needing moral support to get through this!
Wednesday, February 26, 2003
Well, yesterday was weird. I had a heat reaction while I was at work yesterday. I wore a sweater (cotton, not incredibly heavy), and I decided to drink some herbal tea during the afternoon. The next thing I knew, I felt flushed and worn out. I quickly switched to cold water instead of tea, but I still felt tired. When I went to my Pilates class, I did not feel completely up to par. I'm proud of myself, though, because I did finish the class without wearing myself out. I recognized my limits and stopped when I needed to - at one point, I even got up and grabbed a cup of water.
One of my biggest fears about exercising is not being able to recognize my limits and pushing myself to where I was wearing myself out instead of building myself up. Last night was a prime example of not doing that. After the exercise. a shower, and dinner, I felt loads better.
Another cool thing about the exercise class is that I'm really starting to notice some progress. Whether it's more control over a Pilates move (I can do Rolling Like a Ball and actually roll when I want to instead of just flopping around spastically) or going deeper into a hamstring stretch, I'm seeing my body capable of doing some things it couldn't do at the beginning of the year.
One of my biggest fears about exercising is not being able to recognize my limits and pushing myself to where I was wearing myself out instead of building myself up. Last night was a prime example of not doing that. After the exercise. a shower, and dinner, I felt loads better.
Another cool thing about the exercise class is that I'm really starting to notice some progress. Whether it's more control over a Pilates move (I can do Rolling Like a Ball and actually roll when I want to instead of just flopping around spastically) or going deeper into a hamstring stretch, I'm seeing my body capable of doing some things it couldn't do at the beginning of the year.
Tuesday, February 25, 2003
Monday, February 24, 2003
MS Conference
I wasn't all that enthused about going, because it was foggy, it was early on a Saturday morning, and I had partied hard on Friday night. But my indifference quickly vanished, because the conference was quite informative. I had heard some of the stuff before, but as I pointed out to one of the company reps, you hear different things at different points in your illness, so some repetition can be good. I took some good notes and brought home some research updates to read later.
An MS advocate also spoke, and she talked about her ritual before taking her shots. Apparently, her crush on Chuck Norris is big enough to dull the pain of the shot, so she watches "Walker, Texas Ranger" before her shot. I immediately knew who I would substitute for Chuck Norris and decided that I need to start taping "Alias" to watch before my shot, since I'm a big Michael Vartan fan. We rented a movie on Saturday night, One Hour Photo. Robin Williams stars in it, but guess who else is in it? Yup. So I got to see if my variation of her ritual would work. I have to say, the shot didn't hurt that night.
Get With the Program
I mentioned in my last entry that I'm reading this book and following the plan. I successfully completed a week at Phase 1, drinking at least 6 glasses of water every day, completing my written exercises, and doing the exercises at least 3 days (I did 4 days). The book suggests staying in Phase 1 for 1-3 weeks before proceeding to the second phase. In Phase 2, I add one more glass of water per day, and I do the functional exercises 4 days a week. I also start to add cardio exercise and limit my alcohol consumption.
I guess I consider myself in Phase 1 1/2 right now. I'm going to start integrating the next phase stuff this week, but I'll consider it a successful week if I complete the Phase 1 requirements again. Anything on top of that will just be gravy. I've had a tendency in the past to try and do too much too fast, so I don't want to set myself up for failure.
I wasn't all that enthused about going, because it was foggy, it was early on a Saturday morning, and I had partied hard on Friday night. But my indifference quickly vanished, because the conference was quite informative. I had heard some of the stuff before, but as I pointed out to one of the company reps, you hear different things at different points in your illness, so some repetition can be good. I took some good notes and brought home some research updates to read later.
An MS advocate also spoke, and she talked about her ritual before taking her shots. Apparently, her crush on Chuck Norris is big enough to dull the pain of the shot, so she watches "Walker, Texas Ranger" before her shot. I immediately knew who I would substitute for Chuck Norris and decided that I need to start taping "Alias" to watch before my shot, since I'm a big Michael Vartan fan. We rented a movie on Saturday night, One Hour Photo. Robin Williams stars in it, but guess who else is in it? Yup. So I got to see if my variation of her ritual would work. I have to say, the shot didn't hurt that night.
Get With the Program
I mentioned in my last entry that I'm reading this book and following the plan. I successfully completed a week at Phase 1, drinking at least 6 glasses of water every day, completing my written exercises, and doing the exercises at least 3 days (I did 4 days). The book suggests staying in Phase 1 for 1-3 weeks before proceeding to the second phase. In Phase 2, I add one more glass of water per day, and I do the functional exercises 4 days a week. I also start to add cardio exercise and limit my alcohol consumption.
I guess I consider myself in Phase 1 1/2 right now. I'm going to start integrating the next phase stuff this week, but I'll consider it a successful week if I complete the Phase 1 requirements again. Anything on top of that will just be gravy. I've had a tendency in the past to try and do too much too fast, so I don't want to set myself up for failure.
Friday, February 21, 2003
Oops. It's been a while since I've updated this, hasn't it?
Publicity? for my blog
I was so excited. Our local paper was doing an article on local webloggers, and they contacted me about an interview. We had a 10-minute phone interview, and she talked to me about the possibility of getting my picture taken. Well, the article appeared, and the only thing they used from my interview was...my age. I'm sure that the lives of my fellow Raleighites are so much richer now that they know I'm 35. I've gotten one email based on that article, from a guy who wanted me to read his book. The book has nothing to do with MS, he just wanted someone to read it. Nope.
Upcoming MS Events
Tomorrow, I'm heading to Durham for a half-day conference on clinical trials. Should be an interesting update on the ongoing research.
The MS Walk is April 5. I haven't signed up yet, because I heard there was a chance that the Pooch Parade would be held on the same weekend. The doggies had so much fun that I have to make sure to participate again this year. I don't think that's going to happen, though, so I can sign up for the walk. Time to start training! My friend Donna mentioned putting together a team, so we're trying to think of a cool name. After all, I was one of the top individual fundraisers for the Pooch Parade (thanks to y'all!!!!), so if our team name gets published, we don't want it to be something stupid. Once I do sign up, I'll include a link here, so people can donate if they choose.
The new medicine
I've been on my new medicine (in addition to the Avonex) for the past two weeks, and things are going well. I've had some insomnia, but otherwise no bad side effects. The neurologist told me that my hip pain would probably lessen, and it has. Sleeping had been so difficult due to the pain, but it's subsided to only occasional twinges.
Exercising
I'm starting to get a more regular exercise program going. The Pilates class is going so well that I'm going to sign up for the Mat 2 class starting in March. Both Tim and I agree that I've been getting a lot of benefits from it and should continue. I've also been reading Get With the Program by Bob Greene (Oprah's trainer), and have started to follow that program as well. Right now, I'm in Phase 1. I've completed some journaling exercises, and I'm making sure I drink at least 6 glasses of water each day. Most days, I drink more than that. He also has a series of "functional exercises" that I've completed three days this week. The fourth day, I went to a makeup Pilates class.
I had let my weight go after getting my diagnosis, but I'm working on getting back to a healthy weight. More importantly, I'm just working on being healthier in general. If I exercise, I can cut down on the fatigue and pain and be better prepared to get through each day.
Publicity? for my blog
I was so excited. Our local paper was doing an article on local webloggers, and they contacted me about an interview. We had a 10-minute phone interview, and she talked to me about the possibility of getting my picture taken. Well, the article appeared, and the only thing they used from my interview was...my age. I'm sure that the lives of my fellow Raleighites are so much richer now that they know I'm 35. I've gotten one email based on that article, from a guy who wanted me to read his book. The book has nothing to do with MS, he just wanted someone to read it. Nope.
Upcoming MS Events
Tomorrow, I'm heading to Durham for a half-day conference on clinical trials. Should be an interesting update on the ongoing research.
The MS Walk is April 5. I haven't signed up yet, because I heard there was a chance that the Pooch Parade would be held on the same weekend. The doggies had so much fun that I have to make sure to participate again this year. I don't think that's going to happen, though, so I can sign up for the walk. Time to start training! My friend Donna mentioned putting together a team, so we're trying to think of a cool name. After all, I was one of the top individual fundraisers for the Pooch Parade (thanks to y'all!!!!), so if our team name gets published, we don't want it to be something stupid. Once I do sign up, I'll include a link here, so people can donate if they choose.
The new medicine
I've been on my new medicine (in addition to the Avonex) for the past two weeks, and things are going well. I've had some insomnia, but otherwise no bad side effects. The neurologist told me that my hip pain would probably lessen, and it has. Sleeping had been so difficult due to the pain, but it's subsided to only occasional twinges.
Exercising
I'm starting to get a more regular exercise program going. The Pilates class is going so well that I'm going to sign up for the Mat 2 class starting in March. Both Tim and I agree that I've been getting a lot of benefits from it and should continue. I've also been reading Get With the Program by Bob Greene (Oprah's trainer), and have started to follow that program as well. Right now, I'm in Phase 1. I've completed some journaling exercises, and I'm making sure I drink at least 6 glasses of water each day. Most days, I drink more than that. He also has a series of "functional exercises" that I've completed three days this week. The fourth day, I went to a makeup Pilates class.
I had let my weight go after getting my diagnosis, but I'm working on getting back to a healthy weight. More importantly, I'm just working on being healthier in general. If I exercise, I can cut down on the fatigue and pain and be better prepared to get through each day.
Monday, February 03, 2003
Well, I got through the business trip just fine, only to turn around and head right back out of town for a funeral. And then when I got back to town, another funeral. Needless to say, I was exhausted by all of that. Tim gave me my shot right before we left town. I vegged out in the car, but I wasn't myself the whole day. I just laid in the guest room and tried to nap. I felt like a new person the next day. Everyone was quite understanding of my situation, and that helped me a lot.
Since I've been back, I've been trying to get back into some routine and take care of myself. I did have a follow-up appointment with the neurologist. MS-wise, I'm doing fine and not showing any active symptoms at this point. I've just got some other health issues that I need to be addressing right now. Like most folks who make New Year's Resolutions, I put "losing weight" on the list. The doctor ordered blood work, and we know that my thyroid is not causing my weight gain or fatigue.
This weekend was much calmer. I did have to work on Saturday, but I didn't get up early. On Sunday, I decided not to set an alarm, and I woke up at 11am! My body needed the rest.
So I'll be starting some new medicine in the next week that will hopefully alleviate some of the other health stuff. On the downside, I might have trouble sleeping on this new drug. Oh, great. I woke up at 4:45 this morning and couldn't go back to sleep, so the last thing I need is a drug that could cause even more nights like that. We'll see how things work out. On the plus side, my doctor thinks it could help with some of the hip pain I've been having. That would be a welcome relief, since my yoga tapes and Pilates mat classes aren't getting it done on their own.
Another plus side...my doctor is quite optimistic when it comes to my future mobility. I know he can't say with certainty that I'll never have problems, but it's sure nice to know that he thinks it's going to be less likely in my case. After all, each case of MS is different, and there are such a variety of symptoms.
I'm working on getting some routines in place to help me chip away at my long "To Do" list. There's a cool website called FlyLady that talks about creating order out of chaos. I've been reading for a long while and doing things haphazardly, but now I'm going to be more diligent. I'm starting off by creating simple morning and evening routines, and I'll also try to spend at least 15 minutes per day decluttering.
I'm also getting my "To Do" list better organized, thanks to the computer. We had to get a new one earlier this month, and I've tried to take advantage of it. Our old one was so slow that it didn't help me out to try and use software, spreadsheets, etc. to get organized. This one is much faster, and has been quite useful already. Once I finish setting up our finances and some other stuff on it, I'll be ready for some major computer-geek fun. Yeah, I know, not everyone thinks that sort of stuff is fun. But I enjoy it.
Since I've been back, I've been trying to get back into some routine and take care of myself. I did have a follow-up appointment with the neurologist. MS-wise, I'm doing fine and not showing any active symptoms at this point. I've just got some other health issues that I need to be addressing right now. Like most folks who make New Year's Resolutions, I put "losing weight" on the list. The doctor ordered blood work, and we know that my thyroid is not causing my weight gain or fatigue.
This weekend was much calmer. I did have to work on Saturday, but I didn't get up early. On Sunday, I decided not to set an alarm, and I woke up at 11am! My body needed the rest.
So I'll be starting some new medicine in the next week that will hopefully alleviate some of the other health stuff. On the downside, I might have trouble sleeping on this new drug. Oh, great. I woke up at 4:45 this morning and couldn't go back to sleep, so the last thing I need is a drug that could cause even more nights like that. We'll see how things work out. On the plus side, my doctor thinks it could help with some of the hip pain I've been having. That would be a welcome relief, since my yoga tapes and Pilates mat classes aren't getting it done on their own.
Another plus side...my doctor is quite optimistic when it comes to my future mobility. I know he can't say with certainty that I'll never have problems, but it's sure nice to know that he thinks it's going to be less likely in my case. After all, each case of MS is different, and there are such a variety of symptoms.
I'm working on getting some routines in place to help me chip away at my long "To Do" list. There's a cool website called FlyLady that talks about creating order out of chaos. I've been reading for a long while and doing things haphazardly, but now I'm going to be more diligent. I'm starting off by creating simple morning and evening routines, and I'll also try to spend at least 15 minutes per day decluttering.
I'm also getting my "To Do" list better organized, thanks to the computer. We had to get a new one earlier this month, and I've tried to take advantage of it. Our old one was so slow that it didn't help me out to try and use software, spreadsheets, etc. to get organized. This one is much faster, and has been quite useful already. Once I finish setting up our finances and some other stuff on it, I'll be ready for some major computer-geek fun. Yeah, I know, not everyone thinks that sort of stuff is fun. But I enjoy it.
Wednesday, January 22, 2003
Time to register another first - my first business trip since my diagnosis.
I couldn't go just anywhere. I had to go to New England...in the dead of winter...during a cold snap. What a rude awakening to hear "It's zero degrees outside" when my alarm went off this morning. I was a bit nervous about this trip. I'm completely on my own. Granted, I did this all the time when I was consulting. But then, I didn't know about the MS. It's different when you throw an illness into the loop.
And how's it going? Fine. I'm staying in a delightful inn in Westborough, MA where I feel pampered. The room is huge and toasty, with a couch and plenty of room for my yoga mat. And there's a full kitchen downstairs, so I don't have to go out at night in the ghastly cold. Funny, when I'm home, I love to go out to eat, but in this weather, I much prefer hanging out at the inn, munching on a rotisserie chicken. The only nerve-wracking part was trying to find the inn that first night. Note to self: Print out the freakin' directions from the Internet before going on any trip. I made fun of the van driver who couldn't get a college group to LaGuardia Airport, but yet I neglected to get my own directions this trip.
I have made some concessions for my illness, but nothing too drastic. I prepaid for gas for the rental car. That way, I don't have to worry about finding a gas station in downtown Boston by myself after dark in below-zero windchills when I'm in a hurry. It's worth not having to deal with that stress. And I bought a bunch of water bottles at the grocery store yesterday, so that I can keep myself properly hydrated. Then there's my shot - I moved that out to Saturdays, just in case I have a problem getting home from this trip. Since they're calling for snow in NC tonight and tomorrow, I'm glad I've taken that precaution. I also left room in my carry-on bag for an extra change of clothes and my toothbrush, in case I get to call Logan Airport my home-away-from-home tomorrow night.
I couldn't go just anywhere. I had to go to New England...in the dead of winter...during a cold snap. What a rude awakening to hear "It's zero degrees outside" when my alarm went off this morning. I was a bit nervous about this trip. I'm completely on my own. Granted, I did this all the time when I was consulting. But then, I didn't know about the MS. It's different when you throw an illness into the loop.
And how's it going? Fine. I'm staying in a delightful inn in Westborough, MA where I feel pampered. The room is huge and toasty, with a couch and plenty of room for my yoga mat. And there's a full kitchen downstairs, so I don't have to go out at night in the ghastly cold. Funny, when I'm home, I love to go out to eat, but in this weather, I much prefer hanging out at the inn, munching on a rotisserie chicken. The only nerve-wracking part was trying to find the inn that first night. Note to self: Print out the freakin' directions from the Internet before going on any trip. I made fun of the van driver who couldn't get a college group to LaGuardia Airport, but yet I neglected to get my own directions this trip.
I have made some concessions for my illness, but nothing too drastic. I prepaid for gas for the rental car. That way, I don't have to worry about finding a gas station in downtown Boston by myself after dark in below-zero windchills when I'm in a hurry. It's worth not having to deal with that stress. And I bought a bunch of water bottles at the grocery store yesterday, so that I can keep myself properly hydrated. Then there's my shot - I moved that out to Saturdays, just in case I have a problem getting home from this trip. Since they're calling for snow in NC tonight and tomorrow, I'm glad I've taken that precaution. I also left room in my carry-on bag for an extra change of clothes and my toothbrush, in case I get to call Logan Airport my home-away-from-home tomorrow night.
Thursday, January 16, 2003
It's snowing. Not as much as I would like, but it is snowing. I feel like a 7-year-old, hoping enough snow falls that school will be cancelled. I have a feeling I'm going to be disappointed.
Pilates
I've been having a lot of fun with my Pilates classes. I went to my second mat class this week. I have a lot of work to do, but I plan to practice a lot while I'm on my business trip next week.
Last night, I had a private equipment session. Pilates equipment looks like a cross between a torture chamber and a bed designed by Tim Burton. Between the challenge of the springs' resistance and the helpful trainer offering assisted stretching, I got a major workout. When I was in some of the positions, I thought, "Didn't they consider this torture during the medieval times?" But it felt wonderful. I've got two more sessions on my package, and then I have to figure out a way to be able to afford some more.
Pilates
I've been having a lot of fun with my Pilates classes. I went to my second mat class this week. I have a lot of work to do, but I plan to practice a lot while I'm on my business trip next week.
Last night, I had a private equipment session. Pilates equipment looks like a cross between a torture chamber and a bed designed by Tim Burton. Between the challenge of the springs' resistance and the helpful trainer offering assisted stretching, I got a major workout. When I was in some of the positions, I thought, "Didn't they consider this torture during the medieval times?" But it felt wonderful. I've got two more sessions on my package, and then I have to figure out a way to be able to afford some more.
Tuesday, January 14, 2003
Exercise
They used to tell people with MS to take it easy. Exercise? Oh no, that just stresses the body...and you're dealing with enough stress, you poor thing.
Well, no more. Evidence is showing that exercise is quite good for people with MS. It's a way to reduce stress and fatigue, as well as improve strength and flexibility. I was exercising quite regularly before I knew I had MS, but then I joined the Slacker Club. I was just too ticked off at my body to make time for exercise, since, after all, I had been exercising and got sick anyway.
I'm getting back into the routine. During a Junior League silent auction, I picked up a Pilates package which includes some classes, some private equipment sessions, and a massage. I went to the first class last week, and I'm going to sign up for the whole 10-week beginning session. I think it will do me some good, especially helping to strengthen my back. My first private equipment session is tomorrow. And I haven't forgotten about the massage - I never would! - I'm just saving that.
I work in a different building now (same company, they just moved my group), and am literally down the hall from a workout room. So I have no excuse. I went yesterday after work and had a grueling session on the elliptical trainer. The problem is, it was too grueling, and now I'm run down. I forgot the cardinal rule for people with MS and for people resuming an exercise program after a long layoff:
Don't push too hard too fast.
I overdid it, and I'm paying for it. Sometimes when I push too hard, my right leg goes numb below the knee. Other times, I just get tired. No numbness this time, but I was one majorly tired puppy afterwards (and still am). On the plus side, I slept beautifully last night.
MS Events
This is a busy week on my MS Society chapter's schedule. On Thursday, there's the Working Women's luncheon and the monthly meeting of the self-help group. On Saturday, there's a conference for newly diagnosed from 9am to 3pm.
I'm going to lunch, but that's it. I've been to so many events over the past several months that I really feel like I'm pretty up-to-date on the news, research, information, etc. And I don't think it hurts for me to put a little distance every once in awhile. I don't want to bog my thoughts down so much into focusing on MS that I forget about the other things in my life.
This week is certainly a busy one, even without those events. I had a board meeting last night, Pilates class tonight, Junior League meeting tonight, and a Pilates exercise session tomorrow. Amidst all of this, I also have to get ready for my business trip next week. That trip is a big reason I'm staying home on Saturday. I'll need the time to do laundry, pack, and basically get things done so I don't feel overwhelmed before I get on the plane. And now the weathermen are saying we might get some winter weather on Friday. Hello???? What part of already busy is so hard to understand here?
Insurance Issues
Well, my company changed medical insurance providers, effective 1/1/03. Given the headaches I had getting my medicine and coverage straightened out in the first place, I was understandably nervous about this. I was reassured, though, when I saw all of my doctors listed as part of their network, and when I saw Avonex and the other MS drugs listed on their Preferred drug list for prescriptions. This meant that I'd get the lower copay and shouldn't have to worry about getting my medicine. I notified the delivery service that my insurance was changing, and left it at that.
Until I got the phone call that it wouldn't be that easy.
Apparently, I needed to use a new delivery service to get my medicine - my insurance doesn't work with my current carrier. I panicked. Oh great, I'm going to get put through more hoops, and have to deal with the nightmares of bureaucracy again. How many times would I get hung up during this round of phone calls.
Relax. It turned out to be much easier than that. I called, and they were willing to arrange my next delivery date on the spot. Just like before, I'll have it waiting in my carport when I get home on the designated day. The only thing they needed that I couldn't give them right away was a prescription, and they gave me the contact numbers so my doctor's office could phone or fax the prescription directly to them.
So I had one hoop to jump through - but it was a small one, so that's OK.
They used to tell people with MS to take it easy. Exercise? Oh no, that just stresses the body...and you're dealing with enough stress, you poor thing.
Well, no more. Evidence is showing that exercise is quite good for people with MS. It's a way to reduce stress and fatigue, as well as improve strength and flexibility. I was exercising quite regularly before I knew I had MS, but then I joined the Slacker Club. I was just too ticked off at my body to make time for exercise, since, after all, I had been exercising and got sick anyway.
I'm getting back into the routine. During a Junior League silent auction, I picked up a Pilates package which includes some classes, some private equipment sessions, and a massage. I went to the first class last week, and I'm going to sign up for the whole 10-week beginning session. I think it will do me some good, especially helping to strengthen my back. My first private equipment session is tomorrow. And I haven't forgotten about the massage - I never would! - I'm just saving that.
I work in a different building now (same company, they just moved my group), and am literally down the hall from a workout room. So I have no excuse. I went yesterday after work and had a grueling session on the elliptical trainer. The problem is, it was too grueling, and now I'm run down. I forgot the cardinal rule for people with MS and for people resuming an exercise program after a long layoff:
I overdid it, and I'm paying for it. Sometimes when I push too hard, my right leg goes numb below the knee. Other times, I just get tired. No numbness this time, but I was one majorly tired puppy afterwards (and still am). On the plus side, I slept beautifully last night.
MS Events
This is a busy week on my MS Society chapter's schedule. On Thursday, there's the Working Women's luncheon and the monthly meeting of the self-help group. On Saturday, there's a conference for newly diagnosed from 9am to 3pm.
I'm going to lunch, but that's it. I've been to so many events over the past several months that I really feel like I'm pretty up-to-date on the news, research, information, etc. And I don't think it hurts for me to put a little distance every once in awhile. I don't want to bog my thoughts down so much into focusing on MS that I forget about the other things in my life.
This week is certainly a busy one, even without those events. I had a board meeting last night, Pilates class tonight, Junior League meeting tonight, and a Pilates exercise session tomorrow. Amidst all of this, I also have to get ready for my business trip next week. That trip is a big reason I'm staying home on Saturday. I'll need the time to do laundry, pack, and basically get things done so I don't feel overwhelmed before I get on the plane. And now the weathermen are saying we might get some winter weather on Friday. Hello???? What part of already busy is so hard to understand here?
Insurance Issues
Well, my company changed medical insurance providers, effective 1/1/03. Given the headaches I had getting my medicine and coverage straightened out in the first place, I was understandably nervous about this. I was reassured, though, when I saw all of my doctors listed as part of their network, and when I saw Avonex and the other MS drugs listed on their Preferred drug list for prescriptions. This meant that I'd get the lower copay and shouldn't have to worry about getting my medicine. I notified the delivery service that my insurance was changing, and left it at that.
Until I got the phone call that it wouldn't be that easy.
Apparently, I needed to use a new delivery service to get my medicine - my insurance doesn't work with my current carrier. I panicked. Oh great, I'm going to get put through more hoops, and have to deal with the nightmares of bureaucracy again. How many times would I get hung up during this round of phone calls.
Relax. It turned out to be much easier than that. I called, and they were willing to arrange my next delivery date on the spot. Just like before, I'll have it waiting in my carport when I get home on the designated day. The only thing they needed that I couldn't give them right away was a prescription, and they gave me the contact numbers so my doctor's office could phone or fax the prescription directly to them.
So I had one hoop to jump through - but it was a small one, so that's OK.
Thursday, January 02, 2003
Resolutions
Like many folks, I made resolutions focused on improving my health during 2003. Had an interesting start to attempting to complete them, though.
I had gotten a talking pedometer at the MS Walk, but I had never taken the thing out of the box. Well, like a good resolution maker, I took it out yesterday and programmed it. I programmed in my step length and set the clock.
But...at 6am, I realized I should have turned off the alarm. It was weird waking to a mechanical voice saying, "The time is 6am. Your alarm was set for 6am." Luckily, I had planned to get up at 6am anyway.
So I'm getting ready, and I drive to work. As I turn the corner to my office, I notice the pedometer is no longer hooked to my waist. Dang it, I lost the thing already. Nope, it had just slipped off and was beside me on the seat. But as I'm walking into the office building...plop. It falls in the parking lot. Let's just say, it won't be doing any more talking.
I do have another talking pedometer that I got in a goodie bag. Let's see if this one can survive for more than 2 hours. If not, then I'll have to return to the mute version.
New Year's Eve Celebration
Well, it was the same...but different. Yes, I went out and partied. I danced like a crazy fool. I drank champagne and martinis and ate lump crabmeat. I stayed up until the wee small hours of 2003. And I had loads of fun.
It was a little different than last year, though. I started having back spasms early in the evening, but I danced through the pain. I refused to let this stupid disease mess up the party. And yeah, I got tired, but my friends were understanding when I said I had to take a break from dancing.
At 11pm, there was a Caribbean party, to celebrate New Year's in Barbados. This included fireworks on the veranda. It was too foggy to see much, but the temperature was absolutely delightful. I took a number of dance breaks out on that veranda during the evening - perfect way to avoid overheating.
I knew I would pay for it the next day, but I didn't have the traditional reveler's hangover. No, I was just very tired and had to take it easy all day.
MS News
Opened up my newspaper this morning to find out about some promising results published in the New England Journal of Medicine for a drug called Antegren. I had heard of it before from my neurologist. Since I am still of child-bearing age and have not committed to not getting pregnant, we decided I shouldn't start taking it - put as little medicine in my body as possible for the time being. Of course, the big news for my local paper was that it could be manufactured right here in the good ol' Research Triangle Park.
For more information, check out:
Test drug may mean new treatment for MS, Crohn's
Blog News
I'm probably going to play with a new template over the next few days, since it's been months since the Pooch Parade. Stay tuned for a new look for a new year.
Like many folks, I made resolutions focused on improving my health during 2003. Had an interesting start to attempting to complete them, though.
I had gotten a talking pedometer at the MS Walk, but I had never taken the thing out of the box. Well, like a good resolution maker, I took it out yesterday and programmed it. I programmed in my step length and set the clock.
But...at 6am, I realized I should have turned off the alarm. It was weird waking to a mechanical voice saying, "The time is 6am. Your alarm was set for 6am." Luckily, I had planned to get up at 6am anyway.
So I'm getting ready, and I drive to work. As I turn the corner to my office, I notice the pedometer is no longer hooked to my waist. Dang it, I lost the thing already. Nope, it had just slipped off and was beside me on the seat. But as I'm walking into the office building...plop. It falls in the parking lot. Let's just say, it won't be doing any more talking.
I do have another talking pedometer that I got in a goodie bag. Let's see if this one can survive for more than 2 hours. If not, then I'll have to return to the mute version.
New Year's Eve Celebration
Well, it was the same...but different. Yes, I went out and partied. I danced like a crazy fool. I drank champagne and martinis and ate lump crabmeat. I stayed up until the wee small hours of 2003. And I had loads of fun.
It was a little different than last year, though. I started having back spasms early in the evening, but I danced through the pain. I refused to let this stupid disease mess up the party. And yeah, I got tired, but my friends were understanding when I said I had to take a break from dancing.
At 11pm, there was a Caribbean party, to celebrate New Year's in Barbados. This included fireworks on the veranda. It was too foggy to see much, but the temperature was absolutely delightful. I took a number of dance breaks out on that veranda during the evening - perfect way to avoid overheating.
I knew I would pay for it the next day, but I didn't have the traditional reveler's hangover. No, I was just very tired and had to take it easy all day.
MS News
Opened up my newspaper this morning to find out about some promising results published in the New England Journal of Medicine for a drug called Antegren. I had heard of it before from my neurologist. Since I am still of child-bearing age and have not committed to not getting pregnant, we decided I shouldn't start taking it - put as little medicine in my body as possible for the time being. Of course, the big news for my local paper was that it could be manufactured right here in the good ol' Research Triangle Park.
For more information, check out:
Test drug may mean new treatment for MS, Crohn's
Blog News
I'm probably going to play with a new template over the next few days, since it's been months since the Pooch Parade. Stay tuned for a new look for a new year.
Monday, December 30, 2002
Just when I think I have this fatigue stuff beat, it comes back to rear its quite-ugly head. I took my shot on Saturday, since Tim was out of town on Friday. Well, Sunday, I was a useless waste of space. Even though I slept well that night, I woke up and was tired, tired, tired. I sat around for the rest of the morning and the early part of the afternoon on the couch. Sometimes, I was too tired to even read. I decided to get up and pay some bills, but even that little bit of activity was enough to exhaust me - I needed to nap for a few hours to recover. I had a simple dinner recipe picked out, but I wasn't up to cooking, so Tim picked up some Bojangles for us. I was worried that all of that sleeping/resting would make it difficult to fall asleep at bedtime, but no problem there.
On the plus side, if I have to be too tired to get up, better that it happened on a day when there was loads of sports on TV. I lost my fantasy football Super Bowl, but I still enjoyed watching the Panthers win.
Today was OK. I felt tired, but nowhere near the mind-numbing fatigue of yesterday. I made it through a whole work day and am looking forward to watching Wake Forest play in a bowl game while I eat some lovely crock pot vegetable soup I made.
I'm just hoping I have enough energy to enjoy the New Year's Eve party we're going to tomorrow night. There's going to be fabulous food, and I have a gorgeous dress to wear. I'm a little sad, thinking that I'll be more subdued than I was last year, when I danced like crazy the whole night. But I'll be with good friends and my honey, so I know I'll have a wonderful time.
On the plus side, if I have to be too tired to get up, better that it happened on a day when there was loads of sports on TV. I lost my fantasy football Super Bowl, but I still enjoyed watching the Panthers win.
Today was OK. I felt tired, but nowhere near the mind-numbing fatigue of yesterday. I made it through a whole work day and am looking forward to watching Wake Forest play in a bowl game while I eat some lovely crock pot vegetable soup I made.
I'm just hoping I have enough energy to enjoy the New Year's Eve party we're going to tomorrow night. There's going to be fabulous food, and I have a gorgeous dress to wear. I'm a little sad, thinking that I'll be more subdued than I was last year, when I danced like crazy the whole night. But I'll be with good friends and my honey, so I know I'll have a wonderful time.
Friday, December 27, 2002
My legs hurt.
While I was in the shower this morning, my right leg started to tingle. I thought this might be a sign that my shower was too hot. After all, I had been warned that I'd probably experience some heat sensitivity, and that it would not be unusual if I had a brief flare-up of symptoms during/after a hot shower. But even though the tingling has subsided, my legs still hurt.
It's probably just inactivity, just like if I didn't have MS. After all, I haven't exercised regularly in a long while, so I should feel some stiffness and soreness. I'm just getting over a cold too, so I'm looking forward to getting more active.
Yeah, I had a cold. I was told that one of the bright sides of having MS was that I would have fewer colds and other similar illnesses, since my immune system is hyperactive. No fair, I want my money back. I'm still getting colds. One of the few perks of this disease, and I haven't really enjoyed that yet. I want my money back.
While I was in the shower this morning, my right leg started to tingle. I thought this might be a sign that my shower was too hot. After all, I had been warned that I'd probably experience some heat sensitivity, and that it would not be unusual if I had a brief flare-up of symptoms during/after a hot shower. But even though the tingling has subsided, my legs still hurt.
It's probably just inactivity, just like if I didn't have MS. After all, I haven't exercised regularly in a long while, so I should feel some stiffness and soreness. I'm just getting over a cold too, so I'm looking forward to getting more active.
Yeah, I had a cold. I was told that one of the bright sides of having MS was that I would have fewer colds and other similar illnesses, since my immune system is hyperactive. No fair, I want my money back. I'm still getting colds. One of the few perks of this disease, and I haven't really enjoyed that yet. I want my money back.
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